vatransportation.us - Scarlett's Story | Taking on NF (and blogging a bit too)

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(A reminder; I write this “conversationally” so forgive me for grammar, spelling, etc)

Wow. It’s been a year. Sunday marks the first anniversary of Scarlett starting treatment with Mekinist (the oral chemotherapy drug she takes; see earlier posts for that story). You may recall that we fought for almost a year before that to get her access to the med. The drug had been used for melanoma and lung cancer, and recently proven effective at reduction of NF related tumors. When we finally found a doctor who would prescribe it, we were thrilled. I’m still trying to link the video of her announcing t

Post eyelid surgery